I recently came across this piece http://www.utne.com/print-article.aspx?id=2147491704
(via Long Reads, from the Utne reader http://www.utne.com/Mind-Body/Eyes-Like-Lithium-Brother-High-Functioning-Autism.aspx,)
Eyes Like Lithium, by Danielle Cadena Deulen, is a moving story describing many facets of living with autism from the point of view of the sibling of a boy with high functioning autism.
Some of us, parents of children with “low-functioning” autism, have expressed annoyance and resentment about the terms “high” and “low” functioning as it relates to autism. The “high” functioning camp seems to have hijacked the conversation, just as parents of the more mildly learning disabled children entirely monopolized a Parent Action Committee meeting at an elementary school that once considered integrating my daughter into its midst. ( They came to their senses as soon as they watched her climb the conference room bookcases, however.)
The vulnerability of these children, to those who have no tolerance for differences like autism, the vulnerability to the bullies of the world, at home and at school, is perhaps more intense for those who are “high” functioning, who have speech and are more able to be integrated into schools and communities. For those children without speech, perhaps they are not seen as even worthy of the effort it takes to bully, or they are so different that they are feared more, or maybe it is that they actually become invisible to their would be tormentors.
That does not mean that I think bullying non-existent for those with lower function. ( But what does that really mean, high and low? It refers to IQ, as measured in the very questionable IQ tests, and also to one’s ability to function in the world.) The bullying exists, I am sure; but, the ability to report the bullying does not.
I have a great deal of sympathy for those with “high functioning” autism. Their ability to “tell all” helps the rest of us to understand what someone like my daughter is unable to tell: that they love; that they hurt; they have fears and dreams; that they are, also, human.